Monday, January 23, 2012

Cognitive Recovery


I gave up the "angry life isn't fair business" in the first year of Will's stroke. I knew I couldn't live like that. I knew we shouldn't live like that. But today I felt a little resentment. I felt justified. And for a moment I felt angry. On national television a reporter repeated Gabby Giffords doctor who said "physical recovery tends to plateau after at the year mark, but cognitive recovery happens for years. It just keeps getting better." I feel like I have been trying to convince doctors and specifically Will's neurosphycologist-- who writes letters to the doctors, of this fact for years. Why am I the one trying to convince the "experts" that my husband is getting better that cognitive recovery happens past 6-12 months unlike much physical recovery. That Will's cognitive recovery has never stopped! Every time our neuropsychologist writes a letter -- it just gets someone else to close a door on us!!! He, and other physicians (not all) have tried to get us to believe that Will's cognition is going to plateau and that will be that.  I recognize our situation is not as black and white as give Will enough time and he'll be the same old doctor he was before. But I also believe he can be a doctor again and he will be a better doctor than he was before. I know this because I have front row seats to the most amazing cognitive recovery ever.

So why was I angry... I guess my anger was really fear. I don't want to hear no again. I don't want Will to be passed by for an interview because of potential misinformation/misunderstanding on the side of the interviewers. I want Will to have a chance. He studies anywhere from 8-10 hours a day!  He doesn't give himself a day or hour off (I should know I tried to get him to just watch a movie with me tonight and he told me he couldn't he needed to study).  I pray with all of my heart that Will's desires and preparation will lead him back to where he really longs to be. And I know not a day goes by that he doesn't pray for the same.  Will has until June to take and pass Step 3 of the boards. After that this particular opportunity will no longer be available to him. Pray for Will this year. Pray for him to be able to scale this very steep wall that could lead him back to a residency position.
Speaking of extraordnary-- our son eats with a spoon and hardly makes a mess at all!!! At 16 months.  Also he is offically walking as of a couple weeks ago!

2 comments:

Kate said...

I'm praying for you guys!!! One of these days I'll see you at the Sugar House group again, if you're there. You gave me another boost of hope reading this tonight, Summer!

oc1dean said...

Hang in there, the complete stroke medical establishment is the naked emperor and we don't have enough little boys willing to speak up.
Dean