Last Wednesday was the six-week anniversary of Will's PEG tube (feeding tube) insertion. Six weeks is the minimum time it had to stay in to prevent scarring. The therapists observed that Will was making great progress on being able to drink thin liquids (e.g., water), so they alerted Dr. Edgley and we went to him on Thursday to get his assessment about removing the tube. His conclusion was that the tube could come out that day. We tried to get an appointment for that afternoon, but had to settle for a time next Tuesday.
PEG tube removal is a prerequisite for the heart procedure. We have a call in to the Cath Lab to set that up for next week.
Dr. Edgley also made some changes to Will's prescriptions. Will will begin taking a number of over-the-counter supplements. He is also taking Aricept now to help his short-term memory. The benefit of that appears over the long term after steady use. The third change is to substiture dextroamphetamine for Provigil to help Will's alertness. Provigil is a newer formulation without much history of its benefits. Dextroamphetamine has been around longer and has been shown to have benefits for cognition.
1 comment:
Thanks for doing this blog. It is great to read how Will is doing. We miss him here in Ohio and pray for him often.
Caitlin
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